Orpheo Guitars: Guitars Giveaway!
- Thread starter orpheo
- Start date
Guys,
I'm sorry for my absence but no, it's not fine. My absence here kinda gave that away I guess...
I need a few more rounds of surgery as well as chemo (chemo means medication). I don't need radiation at this point because it hasn't spread, but as you can tell from my sheer absence, I'm not doing much because I literally and physically can't.
The prognosis is that I will make a full recovery without much chance of it flaring up again but then again: who knows.
What happened is that I went to my GP first. My GP thought she could remove the spots herself (thought they were just moles) but then as soon as one was gone, she discovered more and more and more. Then I got a referral to a dermatologist as well as an oncologist and there more was discovered so I got into that track of medication and surgery. This happened after the week of September 6. Since then, it's been a case of "Rinse and Repeat". The meds I am getting kinda weaken my system and holding a cup of coffee is the max grip I have at this point because it attacks the cells all over to make sure the tumors don't grow more. Also, these meds make me sleepy A.F. I sleep with ease 12 to 16 hours a day (!).
Unfortunately, I will be needing those meds for as long as it takes until I can get into surgery to get them all removed and the removal stage goes into two parts: first the majority and all they can see (October 6: keep fingers crossed!) and then a few weeks later, it will be checked if it was all taken out. If it is, I can get off the meds and then I'll get a checkup six months later but a few days after I can stop these meds, I will start to bounce back. Or, so I should.
I'm sorry for my absence but no, it's not fine. My absence here kinda gave that away I guess...
I need a few more rounds of surgery as well as chemo (chemo means medication). I don't need radiation at this point because it hasn't spread, but as you can tell from my sheer absence, I'm not doing much because I literally and physically can't.
The prognosis is that I will make a full recovery without much chance of it flaring up again but then again: who knows.
What happened is that I went to my GP first. My GP thought she could remove the spots herself (thought they were just moles) but then as soon as one was gone, she discovered more and more and more. Then I got a referral to a dermatologist as well as an oncologist and there more was discovered so I got into that track of medication and surgery. This happened after the week of September 6. Since then, it's been a case of "Rinse and Repeat". The meds I am getting kinda weaken my system and holding a cup of coffee is the max grip I have at this point because it attacks the cells all over to make sure the tumors don't grow more. Also, these meds make me sleepy A.F. I sleep with ease 12 to 16 hours a day (!).
Unfortunately, I will be needing those meds for as long as it takes until I can get into surgery to get them all removed and the removal stage goes into two parts: first the majority and all they can see (October 6: keep fingers crossed!) and then a few weeks later, it will be checked if it was all taken out. If it is, I can get off the meds and then I'll get a checkup six months later but a few days after I can stop these meds, I will start to bounce back. Or, so I should.
I'm not a (medical) doctor, by any means, so I can't give specifics.
As to how or why? No idea. It doesn't run in my family and I'm not someone who basks in the sun for hours on end. Bad luck, I suppose. I mean, 2020 was unpleasant, 2021 was shaping up to be great but the Universe doesn't allow it to be too great, does it?
I can only hope for your patience. I found out the issues fast (actually, it was my fiancée who found it) and that, plus the Dutch health care system being what it is, will all but guarantee I'll spring back to a full clean bill of health.
Life throws you for a loop every now and then and it takes a closely-knit inner circle and the kindness of strangers to get through the challenges that life throws at you.
Once I have more news, I will post here. If you have questions, just drop me a line. I do get notifications via email about PM's, I just stopped following forums (in general) because (... gosh I sound like a grandpa on his deathbed here), it's too exhausting.
As to how or why? No idea. It doesn't run in my family and I'm not someone who basks in the sun for hours on end. Bad luck, I suppose. I mean, 2020 was unpleasant, 2021 was shaping up to be great but the Universe doesn't allow it to be too great, does it?
I can only hope for your patience. I found out the issues fast (actually, it was my fiancée who found it) and that, plus the Dutch health care system being what it is, will all but guarantee I'll spring back to a full clean bill of health.
Life throws you for a loop every now and then and it takes a closely-knit inner circle and the kindness of strangers to get through the challenges that life throws at you.
Once I have more news, I will post here. If you have questions, just drop me a line. I do get notifications via email about PM's, I just stopped following forums (in general) because (... gosh I sound like a grandpa on his deathbed here), it's too exhausting.
eclecticsynergy
Well-known member
Sorry you got bad news, Orpheo.
Chemo can be rough. But it's better than cancer.
Here's hoping you are fully free of it at the end of your treatment.
Chemo can be rough. But it's better than cancer.
Here's hoping you are fully free of it at the end of your treatment.
beaubrummels
Well-known member
Hope this all gets cleared up as soon as possible. Use your super-human powers to fight it and recover.
eclecticsynergy
Well-known member
Orpheo, we're all sending you good thoughts.
It's been a month since we heard from you.
Please let us know how you're doing.
It's been a month since we heard from you.
Please let us know how you're doing.
beaubrummels
Well-known member
Hey Orpheo, just checking in. Been another month. Wondering what is going on with you.
Dear all,
as you can see from the tidal wave of my posts , which is non existent unfortunately, I am not at all present online anymore.
I am bound for another round of cutting and slicing in a few days. It's not okay, yet, but we're getting there. I no longer need the meds! The tumors (yes, plural), are smaller so now they can be removed. The first operation sessions were to get rid of the bulk outside but of course, there is more inside and that is what the meds were supposed to tackle.
I hope to get the guitars out before Christmas. I have to. I wanted to do a fun thing with this giveaway but my illness and the realities that come with it threw a spanner in the works. I am really angry, upset and disappointed at myself because my body feels like it is failing me. I am also sad yet humbled for receiving so much kindness from you. I know that this thing is testing your patience and I am sorry. I hope you believe my apologies.
Everything in my life is now on hold. It is just ridiculous. The push to go on, move on, get something going is extremely frustrating. Even though I want to be productive (and I seriously need to!), I can't.
As an FYI: I am not sure if I said it before, but the tumors are in my neck and they spread quite far downward towards my spine and brainstem. We're working to make sure that they a: don't press on nerves in my neck, b: don't spread to the nervous system. Hopefully that explains a thing or two?
as you can see from the tidal wave of my posts , which is non existent unfortunately, I am not at all present online anymore.
I am bound for another round of cutting and slicing in a few days. It's not okay, yet, but we're getting there. I no longer need the meds! The tumors (yes, plural), are smaller so now they can be removed. The first operation sessions were to get rid of the bulk outside but of course, there is more inside and that is what the meds were supposed to tackle.
I hope to get the guitars out before Christmas. I have to. I wanted to do a fun thing with this giveaway but my illness and the realities that come with it threw a spanner in the works. I am really angry, upset and disappointed at myself because my body feels like it is failing me. I am also sad yet humbled for receiving so much kindness from you. I know that this thing is testing your patience and I am sorry. I hope you believe my apologies.
Everything in my life is now on hold. It is just ridiculous. The push to go on, move on, get something going is extremely frustrating. Even though I want to be productive (and I seriously need to!), I can't.
As an FYI: I am not sure if I said it before, but the tumors are in my neck and they spread quite far downward towards my spine and brainstem. We're working to make sure that they a: don't press on nerves in my neck, b: don't spread to the nervous system. Hopefully that explains a thing or two?
Last edited:
d1dsj
Cornographer
Good luck with everything Mr. O, positivity breeds positivity and I’m pretty sure that’s your nature. Here’s to hoping they get you right real soon so you can get your life back on track. Also prayers for your better half and your family who are taking this on with you. God bless.
beaubrummels
Well-known member
Get well, Orpheo. Hope to hear a more hopeful positive report after the treatment.
eclecticsynergy
Well-known member
Hang in there, Orpheo. Dealing with cancer is seldom a simple thing.
Very glad to learn you no longer have to take the meds!
Very glad to learn you no longer have to take the meds!
